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Dáil
‹ Order of Business

Access to Degos disease treatment

Summary

Deputy Troy asked the Taoiseach to intervene where a constituent with the extremely rare Degos disease had been denied a life-saving drug because of its cost; the Chair directed him to pursue it as a Topical Issue.

The Taoiseach and my party leader spoke earlier about the programme for Government in the context of health. The programme for Government talks about giving "equal access to [health] for all" our citizens. I do not know whether the Taoiseach is aware that one citizen in Ireland suffers from Degos disease. Just 40 or 50 people in the world suffer from it. Does the Taoiseach think it is right or proper that a woman from my constituency has been refused access to a life-saving drug due to its cost?

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Seán Barrett An Ceann Comhairle Fine Gael

Hold it a second now, Deputy.

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Does the Taoiseach think this is right and proper? Does he think it is a fair reflection of his time in Government? The programme for Government promised equal access to our health services. I ask the Taoiseach quite sincerely to look into this individual case.

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Seán Barrett An Ceann Comhairle Fine Gael

The Deputy knows he cannot raise this matter on the Order of Business.

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I am raising it in the context of the programme for Government.

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Seán Barrett An Ceann Comhairle Fine Gael

If the Deputy tables it as a Topical Issue, I will consider it favourably.

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I appreciate that, a Cheann Comhairle, but we are talking about a very serious issue.

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Seán Barrett An Ceann Comhairle Fine Gael

The Deputy knows I cannot have people raising issues that are outside what is allowed.

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Just one person in the whole of the island of Ireland suffers from this disease.

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Seán Barrett An Ceann Comhairle Fine Gael

I appreciate its importance and I would be only too pleased to consider the Deputy's request.

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