Orkambi and cystic fibrosis drugs
Marc MacSharry pressed for a decision on Orkambi and other cystic fibrosis drugs, warning that delays were harming children. The Taoiseach said negotiations were in a critical phase, that the Minister was seeking a longer-term package covering current and future drugs, and that talks were expected to conclude within weeks.
Pages 59 and 64 of the programme for Government refer to cystic fibrosis patients and the provision of breakthrough drugs, respectively. Unfortunately, some weeks ago the Taoiseach was poorly briefed when he responded about the provision of Orkambi and referred to the National Centre for Pharmacoeconomics. He was obviously behind the curve. Is the Minister, Deputy Harris, also behind the curve? I ask because yesterday he stated he needed more time and space to conclude these issues. I cannot help thinking that this reflects the fact there will be a national protest on this matter tomorrow.
How much time does the Government need? On 15 January, Vertex renewed a proposal with a substantially lower price tag than the one the Taoiseach applied two weeks ago. Under the proposal, drugs that were in the development pipeline would also be provided in the long term. There has been no contact between Vertex and the HSE since 3 February. Yesterday, the Minister falsely gave the impression that substantial negotiations were ongoing. What space do we need? Is it to consider the Fine Gael leadership-----
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-----or to provide Orkambi to the people? As I pointed out to the Taoiseach two weeks ago, children grow sicker and some will die while we procrastinate.
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Will the Taoiseach be specific and accurate regarding the timeline for a decision on this issue?
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I think that Pat Rabbitte referred to Deputy MacSharry one day regarding the Deputy's comments. I will not go down there, as they say.
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"When you're in a hole, stop digging" might be a message for the Taoiseach.
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I was not behind the curve when we briefed the Deputy on the previous occasion, nor was the Minister, Deputy Harris. I am well aware of the protest that is scheduled for Wednesday, and the Minister, Deputy Harris, has been in touch with the organisers of that. He stressed today that he expects that this process can be concluded in a matter of weeks, but his overriding priority is to make sure that any agreement that is reached is not just for now, that it would provide certainty for Irish cystic fibrosis patients on the provision of Orkambi and on the provision of Kalydeco and other drugs now and in the future, and not just the instant decision that we would need for the moment.
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Which Vertex has been offering since 15 January.
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What he is looking for is the longer term, Deputy MacSharry, that all of the drugs-----
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The Government has had this information since 15 January.
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Lift the phone. Take the decision.
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Which are included in that offer.
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New drugs are included in that offer.
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I might be able to accommodate other contributors if all Members have respect for the-----
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The Taoiseach did not know last week.
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-----but the Taoiseach is misleading the people.
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"Critical phase"? Lift the phone to Vertex-----
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-----on concluding the process in the interests of all the cystic fibrosis sufferers, not just for now, but for the future, with-----
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Taoiseach, please. I can accommodate others if the Taoiseach and other Members respect the time.