Today we had a presentation from those who represent people who suffer the dreadful medical condition called cystic fibrosis. They are anxious to ascertain when the Government's proposed legislation on family consent and an opt-out register for organ donation will be introduced. They are also concerned to ascertain the latest position on the drug Orkambi.

I do not have a date for the Deputy on the legislation.

As I stated the last time Orkambi was raised in the context of setting out some sort of certainty for the health system, the discussions centre around Orkambi, Kalydeco and any other new drug that comes on stream. My understanding from the Minister for Health is that it is hoped to conclude the discussions in a matter of weeks. I know I said that the last time the matter was raised but that is my information. This issue is of serious concern to those who have cystic fibrosis and their parents. It is hoped the discussions will be concluded in an overall sense in a couple of weeks. I will revert to the Deputy on the legislation.

Will the Taoiseach send me a note on the legislation?

Yes, I will provide an update on work on the Bill and when it is expected.