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Dáil
‹ Leaders' Questions

Narcolepsy case and vaccine concerns

Summary

Deputy Clare Daly raises a young man’s narcolepsy case and the delay in disclosure, then broadens it to concerns about adjuvant vaccinations and a public health scandal. The Taoiseach says he will follow up with the Minister for Health and keep her informed.

It is a great pity the Taoiseach's interest in policing reform was not present a number of years ago when Deputy Wallace and I proposed the precise type of legislative reform he is talking about now. As he is in the mood for catching up, he might want to catch up on another issue as well. I refer to the case of a young man who has narcolepsy, which is a lifelong debilitating disorder. He can fall asleep without warning and has done so. He has smashed his teeth and broken his bones. He experiences terrifying hallucinations in a state of sleep paralysis. He has to be given expensive anaesthetics so that he can get a few hours' sleep. He has developed joint and muscle pain. He suffers from anxiety and depression to the extent that he has tried to kill himself. He is 14 years of age. This condition, for which there is no cure, limits every aspect of his daily life. While his condition is bad, the worst thing is that he did not always have it. He was not born with it. It is not a genetic disorder. This was an avoidable catastrophe. This young man, like 80 others, developed the condition as a result of receiving the Pandemrix vaccination for swine flu in 2010.

The Health Service Executive and the State Claims Agency went into the High Court last week unnoticed and undocumented to obstruct this boy and people like him who are seeking documents under discovery. The HSE and the SCA had stated they would voluntarily disclose these documents in 2015. We need to be clear about the fact that the HSE decided to purchase Pandemrix and continued to distribute it even after it knew it was dangerous and untested and before most of the public in Ireland received it. It knew there was a sevenfold or eightfold risk of serious adverse effects in comparison with its sister drug and alternative vaccinations for which there were no adverse side effects. Poland, Switzerland and the US did not give a licence to Pandemrix, but Ireland gave GlaxoSmithKline, GSK, full indemnity against its harmful side effects. Incidentally, the company made €8 billion in profits out of it.

In 2009, before 95% of Irish children were vaccinated, the Irish Medicines Board, which is now known as the Health Products Regulatory Authority, was told there was a huge difference between the safety profiles of these vaccines. Did the board tell the Minister about this, as it had a statutory obligation to do? Given that it was in possession of that knowledge, why did it continue to administer the least safe vaccine? Was it cheaper? Did the Government have a deal with GSK in return for jobs? Sweden, Finland, Norway, Iceland, France and, recently, Britain have all compensated victims. In contrast, this country's Government is continuing to deny the requests of victims for discretionary medical cards and other benefits. I want to know why Ireland is the only country that does not operate a no-fault vaccine damage payment scheme. Will the Government introduce such a scheme and order the SCA to co-operate with it?

Comment on this
Enda Kenny The Taoiseach Fine Gael

I thank Deputy Daly for raising this matter, which is of intense personal sensitivity for the young person involved. I do not know the answer to the Deputy's question about why the HSE, having said it would voluntarily disclose the information that was sought, seems to have had a sudden change of direction. We will follow that up for the Deputy. The Minister for Health has met representatives of SOUND, which is the support group for people with narcolepsy, in recent days. He has sanctioned the go-ahead for the centre of excellence for sleep disorder at St. James's Hospital. This has been sought for a very long time and has been welcomed by the group involved. As Deputy Daly knows, the programme for Government includes a commitment to examine supports for people who have been harmed by vaccines. The Deputy has made strong claims about Pandemrix and the company involved. She has suggested that the authorities continued to use this vaccine even though they were aware of the difficulties it might cause.

That is something which deserves immediate analysis and I will ensure it is followed through. I do not have the answer to the Deputy's question because I was not aware of the details of the case she mentioned.

Comment on this

I do not expect the Taoiseach to know every detail as that would be completely unreasonable. This is one of the biggest public health scandals in recent years and the Taoiseach should know about it. Now that he does, I am not accepting that he will fob it off on the Minister for Health. I expect the Taoiseach to follow up on some of the issues.

Knowledge about the dangers of adjuvant vaccinations for young people, in particular, has been available from the World Health Organisation since 2007. The HSE and the Irish Medicines Board, now the Health Products Regulatory Authority, were aware in 2009 of the increased dangers of the Pandemrix vaccination.

This was on the agenda in the first ministerial briefing from the Minister for Health almost a year ago. In the minutes of the briefing it was stated that disclosure of the documentation would be a priority for last year. The documentation has not been disclosed.

The State Claims Agency will be in court on 23 May. Will the Taoiseach instruct it to bring forward the documentation to assist people in their fight for justice, given the very serious health consequences for the individuals concerned? Over 80 cases have been diagnosed in what is a completely avoidable catastrophe. The matter is very serious and I expect the Taoiseach to have a hands-on approach.

Comment on this
Enda Kenny The Taoiseach Fine Gael

Deputy Daly said the situation was avoidable given the information that was available to the company. A court case is ongoing. I do not want the Deputy to assume that I would not have an interest in following through on this matter. Many cases come across the desk of the Department of the Taoiseach every week. It is a serious matter. I will work with the Minister for Health to see that the matter is followed up on as soon as possible. I will keep Deputy Daly informed of what is happening.

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