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Dáil
‹ Questions on Promised Legislation

Orkambi access for cystic fibrosis

Summary

Deputy Curran welcomed Jillian McNulty to the Gallery and asked for an update on access to Orkambi for people with cystic fibrosis. The Taoiseach congratulated her on her improved quality of life and said the Health Minister's office would contact the Deputy.

There is a young lady in the Gallery today, Ms Jillian McNulty, who suffers with cystic fibrosis and has been a long-time campaigner for Orkambi. However, her visit here today is on a slightly different and more positive outlook. Having been in hospital for many years and unable to work, she is now in a position, as a result of Orkambi, where her life is changed and she is trying to get back into the workforce. On behalf of her and others who are suffering from cystic fibrosis, is the Taoiseach in a position to update us on the progress being made to make Orkambi available to those who would benefit from it? I recognise it is probably not an appropriate question for the Order of Business.

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Enda Kenny The Taoiseach Fine Gael

I congratulate Jillian on the improvement in her quality of life and I wish her continued success in that regard, as I do for all others, including those who have cystic fibrosis. I do not know the exact details of progress being made today, but I will have the Minister for Health's office contact Deputy Curran directly.

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