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Dáil
‹ Ceisteanna ar Reachtaíocht a Gealladh - Questions on Promised Legislation

Spinraza decision for families

Summary

Deputy Calleary pressed for a timeline on Spinraza, saying 25 families still had no information after a promised follow-up. The Tánaiste said the assessment process must conclude first and the Minister for Health would respond on timescales.

Two weeks ago, I raised with the Tánaiste the issue of Spinraza, a life-changing drug on which 25 families are waiting for a response. He committed to get back to me but has not done so. More important, the 25 families still have no information as to when a decision will be taken. Even though proposals were submitted to the Health Service Executive, HSE, in July, with a much lower price being quoted, there is still no information available for these families and their children. Will the Tánaiste give an indication of when they can expect information?

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Simon Coveney The Tánaiste Fine Gael

As the Deputy knows, a process and an evaluation must conclude before a decision can be finalised on that. I will ask the Minister for Health to come back to him on timescales.

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