Spinraza decision
Deputy Chambers urged the Government to ensure a favourable Spinraza decision for affected families. The Minister of State said a decision was expected the following week but would be made independently of Government.
I wish to raise the issue of Spinraza again. My colleague, Deputy Curran, raised it yesterday and the Minister of State, Deputy Daly, responded. It is my understanding from speaking to the families that the decision is due next week. It is imperative that all members of the Government do everything they can to ensure that the right decision is made and the children are provided with the medication they need to have a proper quality of life. If the wrong decision comes next week there will be severe difficulties within this House, and certainly among all of the families who are affected.
Comment on this
It is expected that there will be a decision next week but that is not guaranteed. As the Deputy knows, this is a function independent of the Government. The Minister does not decide. The decision is made by an independent body. However, we do hope there will be a successful outcome.