Last week, I raised the availability of Spinraza for children suffering with spinal muscular atrophy, SMA. The Minister of State, Deputy Jim Daly, replied, indicating that discussions were ongoing between the pharmaceutical company and the HSE. He also indicated that the talks were coming towards an end and that progress might be made. He did not indicate what the progress was. The reason I raise the question again is that parents are waiting. I am happy to have the Minister of State, Deputy Jim Daly, reply and give an update on the progress and whether there is likely to be a decision this side of Christmas.

My understanding is that there will be a decision this side of Christmas but I cannot box in the HSE in the negotiations by putting a deadline on it, but I am hopeful that there will be.

Will the Minister of State keep me informed?

I will.