Spinraza decision for children
Deputy Calleary pressed for an urgent decision on Spinraza for 25 children who have waited months. The Minister of State said the HSE senior leadership team was expected to decide by the end of the week.
On 20 September I raised the issue of the drug called Spinraza with the Tánaiste. It was subsequently raised by my party leader, Deputy Micheál Martin, and Deputies Lisa Chambers and Curran. Some five months have passed and the 25 children I referred to that day are still waiting. They do not have time to wait. It has been approved in 20 EU countries. The latest country to approve it is our neighbour, Scotland. When will we give information to the 25 families, who do not have time to wait?
Comment on this
I informed the Dáil last week that a decision would be made by the HSE senior leadership team at the end of this week. We await that decision.