Trikafta for cystic fibrosis
Deputy Neville asked about access to Trikafta following approval for the cystic fibrosis model of care. The Taoiseach said he would check the timeframe and ensure the Deputy got a reply.
On page 59 of the programme for Government, there is a reference to a cystic fibrosis, CF, model of care. Last Friday, Cystic Fibrosis Ireland stated on its website that the HSE had approved the treatment of the underlying cause of CF for 80% of the CF population. Trikafta is the first approved treatment that is effective for CF patients aged 12 years and over, with at least one Delta-F508 gene mutation, which affects up to 80% of the CF population in Ireland, as was stated. This is subject to approval of the drug by the European Medicines Agency. Once the approval has been sanctioned, will the Taoiseach indicate the timeline that will be put in place so that we will see patients availing of this drug?
Comment on this
I thank Deputy Neville for his question. I know he has a real interest in cystic fibrosis and improving services for CF patients. I do not know the timeframe but I will check it out and make sure the Deputy gets a reply.