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Dáil
‹ Ceisteanna ar Reachtaíocht a Gealladh - Questions on Promised Legislation

Valproate disability package

Summary

Deputy Tully said promised disability packages for families affected by valproate have not materialised despite earlier commitments and assessments. The Tánaiste said he would follow up with the HSE and the Department for an update.

A disability package was promised to people affected by Valproate, which is a drug prescribed for the treatment of epilepsy but causes serious developmental disorders and congenital malformation in children exposed to it in the womb. A number of years ago, the affected people and families obtained a report from a genetics doctor which was submitted to the CHO area in which they live. They were told a liaison officer would be appointed to engage with those concerned to identify the supports required to address their needs. Despite this announcement of a number of years ago, no packages have been put in place. We are talking about approximately 1,200 people, although there could be over 3,000 potentially impacted. Why promise something that is not going to be delivered? I ask the Tánaiste to follow up with the HSE in regard to these packages for the people affected.

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Leo Varadkar The Tánaiste Fine Gael

The Deputy has raised an important issue. I do not know what the situation is, but I will follow up with the HSE and the Department for an update not only for the Deputy but for myself because there are some people affected in my constituency too.

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