Mazars rare disease report
Deputy O'Sullivan asked when the Mazars report on rare diseases and reimbursement would be published. The Minister for Health said it would be published shortly before Rare Disease Day, along with the Government's proposed actions.
In two weeks, on 28 February, we will mark Rare Disease Day. A few hundred thousand people in this country suffer from a rare disease while more than 6,000 rare diseases known at present and many more are undiagnosed or unidentified. I am asking the Taoiseach, as I have done previously, and the Minister for Health, both publicly and privately, about the Mazars report, the reimbursement process in this country and how we do our business. I was under the impression that this report would have been published at this stage and to my knowledge, that still has not happened. Will the Minister clarify where the Mazars report is? Coming up to Rare Disease Day, it would be welcome if it could be published beforehand.
Comment on this
I thank the Deputy and acknowledge his ongoing work on rare diseases and, indeed, on access to orphan drugs. My intention is that the Mazars report will be published along with a view from Government as to the actions that can be taken in light of the report. That will happen shortly before Rare Disease Day.