We use Google Analytics to see which pages are read and how the site is used, so we know what to improve. This only runs if you accept. See our privacy notice for details.

Dáil
‹ Ceisteanna Pholasaí nó ar Reachtaíocht - Questions on Policy or Legislation

National genomics laboratory

Summary

Deputy Naughten asked where the national genomics laboratory will be housed when Crumlin relocates. The Tánaiste pointed to the national genetics strategy and current HSE work on testing capacity and a national directory, but did not give a site.

Ireland has the highest incidence of rare disease in Europe. It is one in every 17 people, including all children with cancer. One of the critical tools in securing a diagnosis, and, as a result, a possible treatment, is genetic testing. However, when the Crumlin hospital relocates to the national children's hospital, the genetics and genomics laboratory will be left behind. We have now been told that the Crumlin hospital site will be redeveloped as an elective hospital. Where will our national genomics laboratory be housed?

Comment on this

Children's Health Ireland has produced a strategy and there is a national strategy for accelerating genetics and genomics medicine to build a strong national genetics service. It was launched in December 2022. It is important. It is key to improving the evidence base and infrastructural support in genetic testing. The HSE is currently examining national testing capacity and developing a national testing directory for genetics and genomics which will map the current genetic tests conducted across Ireland, providing a more transparent process for referrals. A sum of €2.7 million was approved and key staff were appointed in the newly established national genetics and genomics office. These appointments include a national director for genetics and genomics, a bio-informatics laboratory director, two clinical genetic consultants and six genetic consultants. Budget 2024 allocated a further €1.9 million to fund additional front-line posts, laboratory expenditure and staff training. There is no fear for the service, but the Deputy asked about the physical location. I will come back to him on that.

Comment on this