781. Deputy John Lahart asked the Minister for Health the specific steps being taken to ensure the HSE considers the "time-critical" nature of Friederichs Ataxia during the current price negotiations for Skyclarys; the way in which the commitments in the National Rare Disease Strategy 2025-2030 and the 2026 IPHA Framework Agreement (which aims for a 180-day decision timeline) are being applied to this specific case, to prevent further delays in addressing the ‘unmet need’. [36471/26]

As this is a service matter, I have asked the Health Service Executive to respond to the Deputy as soon as possible.