Skyclarys reimbursement
Deputy Collins and later Deputy McDonald raised the plight of people with Friedreich’s ataxia and pressed for a positive decision on Skyclarys reimbursement. The Minister said the requested statements could not be arranged this week and the Order of Business stood.
Emma O'Shea and others living with Friedreich's ataxia are in the Public Gallery and outside the gates of Leinster House for a peaceful protest. Can we have a debate on the current status of Skyclarys reimbursement and will these sufferers have positive news?
Comment on this
As Deputies know, at the Business Committee last Thursday morning at 11 a.m., which the Ceann Comhairle chaired, two requests were made. One related to statements on the fiscal implications of a united Ireland. A request was made for additional time, and that was facilitated. Requests were also made for statements on Bessborough. I checked with the Minister. She is away on Government duty and it is not possible to have those statements this week. We have a huge amount of legislation to get through this week before the recess. It is really important, so the Order of Business stands.
Comment on this
Question put: "That the proposed arrangements for this week's business be agreed to."
Do you agree with this result?