People living with Friedreich's ataxia are once again outside the gates of the Dáil. They are, as the Taoiseach knows, waiting and waiting for confirmation that they will have access to Skyclarys, a drug that has the potential to be life-transforming for them. In the absence of it, however, far too many of them see disimprovement in their physical experience, and their symptoms and conditions are accelerating. We have a number of them in the Public Gallery. I acknowledge David, Oisín, Emma, Cherie, Joe, Erica and Isabella. Emily Felix, whose specific case I raised with the Taoiseach a couple of weeks ago, is outside, at the gates.

We need a decision from the HSE on access to this drug. I raised it with the Taoiseach last month. It was not on the HSE committee agenda. We need it to be on the agenda-----

The Taoiseach to respond.

-----and we need a positive decision for these people before we rise for the summer.

We stick to our time, Deputy, and that is that.

I think all of us have met with families and young people who have Friedreich's ataxia as a condition and who are eagerly awaiting the outcome of the drug approval process, and there is a process. It is science led, primarily. It is not politically led, primarily. We had an outcome at the last meeting in respect of another drug. All of us want a positive outcome in terms of the deliberations that are ongoing but I think we need to be mindful of the fact, and I mean this is in the best of ways, that we have to allow the meetings to happen and people to take decisions, and then-----

They are waiting two years.

They are not waiting two years specifically. I am not going into the details. It then has to move on-----

It is 700 days.

Taoiseach, time is up.

It then has to move on to the senior clinical team in the HSE-----

Thank you, Taoiseach. I call Deputy Ennis.

-----and we want the right outcome here. I just make that point.