Fampyra access for MS patients
Senators Michael D’Arcy and Michael Mullins seek ministerial attention to access to Fampyra, citing significant benefits reported by people with multiple sclerosis.
Like others, I congratulate everybody who made it through in the different areas of election over the weekend. I commiserate with those who lost seats and particularly those who in participating put their life blood into local and national politics. It is a difficult day for those people. I congratulate my colleague, Senator Deirdre Clune, for her achievement as it is not easy to get elected to the European Parliament.
The drug Fampyra was mentioned by Senator Darragh O'Brien yesterday. This is a serious issue for sufferers of multiple sclerosis.
It is a really serious issue for sufferers of multiple sclerosis. A friend has, unfortunately, contracted the disease and it appears to me that the only reason he is still mobile is because of the drug. It is the human side of Government that sometimes gets lost when one enters politics. One is in difficulty when one loses humanity. The provision of the drug is something that must be funded. We cannot allow people to lose their independence because of the cost of the drug. The drug that my friend has been using for some time on a trial basis is a new one, but it is coming onto the market as the trial has been concluded. In this Chamber we are good at some things; we are quite good at some of the small, human stories. This Chamber should be able to raise a flag for people who suffer from multiple sclerosis and do something about it. I call on the Leader in a constructive manner and not in any confrontational way, in the same way as the issue was raised yesterday, to ask the Minister for Health to come to the Chamber. The issue is very specific to a small number of people who suffer from multiple sclerosis. If the Leader were to ask the Minister to come to the House, he would have the full support of every Member to do something about the issue.
Comment on this
I strongly support the call made by Senator Michael D'Arcy. This is a very serious issue. I heard a detailed discussion on the drug in question on the radio recently and heard stories of patients who had benefited significantly from it. We must tease out the issue with the Minister.
I join colleagues in congratulating everybody who was successful in the recent local and European elections. It is a particularly proud moment for us that one of our colleagues, Senator Deirdre Clune, is now a Member of the European Parliament. We wish her well and every success in her career at European Parliament level.
I ask the Leader to arrange a discussion on serious and violent crime at the earliest opportunity with the Minister for Justice and Equality when she settles into her new role. I say that in the light of the discovery of two badly decomposed bodies on a remote island in County Meath yesterday. Our hearts go out to the families of those two young people whose lives were so violently taken. The situation shows the depths to which the criminal underworld in this country will go to deal with people who have crossed them in one way or another. It is important that the new Minister would hear the views of the Members of this House on how badly we need to tackle this very serious cancer in society.