I propose to amend the Order of Business to include motion No. 12 on the Order Paper, submitted by the Sinn Féin group, without debate. It is about children with serious and complex medical needs and the community participation in primary care that is vital. It is widely accepted best practice that service users should be involved at every stage of service development and implementation. A national steering group is being set up to decide on policy for children with complex medical needs but there is no representative of the parents' voice on that group. It is disappointing and bizarre. It is a ridiculous stance on the part of the HSE. I am proposing this amendment to the Order of Business because of the urgency of the matter. I believe the group will be established in the next few days and we might as well pack up and go home if parents are not included in it. They are the experts. They care for their children and have their best interests at heart. That is true of the other people in the group but we need the ethos of community participation, which is well established in our systems and particularly our health system. We must empower parents in the best interests of their children.

It has been brought to my attention that the proposed amendment to the Order of Business was sent to the office around lunchtime on Monday. The rules for motions such as the one proposed by Senator Devine are that four days' notice must be given, which means it should have been submitted last Thursday. I was not asked to insert it and I have limited discretion. I have decided that I cannot allow the motion because of the abridged time. It has not been on the weekly Order Paper. The other reality is that probably two thirds of the Members are not aware of this, so I must rule against the Senator in that regard. I realise it is important to her but it is not of such urgency that one can decide otherwise. I try to be fair in facilitating Senators but the four days' notice is a precedent that is long established for good reasons. It is not a case of it being an hour or two out, but two full days. It should have been submitted last Thursday before 11 a.m. With regret, I must rule against the proposed amendment.

Can I respond?

Very briefly. I do not wish to debate it.

It is an extreme disappointment for all those parents and carers who are listening. I understand the procedures of getting-----

That is not fair.

Let her finish.

She is being unfair to the Cathaoirleach.

I am not being unfair to the Cathaoirleach. That is for him to decide.

Let the Senator finish her comments. I am sure she will accept the decision.

Make your point briefly.

I am very disappointed for carers and parents in particular. Procedure has got in the way of passing this motion. I put it on the Order Paper in consideration of its urgency. This does not give succour to those children, parents and carers. However, I will resubmit it on the Order Paper for next Tuesday. Incidentally, it is fewer than two thirds of Senators who were not aware of it.

I made my ruling with regret. The next speaker is Senator Maria Byrne.