We use Google Analytics to see which pages are read and how the site is used, so we know what to improve. This only runs if you accept. See our privacy notice for details.

Seanad
‹ An tOrd Gnó - Order of Business

Brambles respite centre closure

Summary

Senator Clonan raised the closure of Brambles day and respite care in Newcastle, County Wicklow, because another adult had entered crisis, leaving families without vital respite. Senator Chambers agreed that respite should be reliable and automatic for parents already under severe pressure.

The Ceannaire is very kind and I thank the Leas-Chathaoirleach.

Brambles is a day and respite care service operated by St. Catherine's Association in Newcastle, County Wicklow. It is a service that is available for parents and carers of children and young adults with intellectual disabilities. I have to declare a conflict of interest here. My nephew, who has Down's syndrome, gets much needed daily respite in the centre. Unfortunately, it has had to close its respite centre to all parents and carers because another adult has gone into crisis. I do not know the full details of that case, but I rather suspect, as can often happen, elderly parents have passed away and suddenly there is an adult who has no service, goes into crisis and has been placed by the HSE in this care facility which now means that none of the children can avail of the respite.

For parents - I think of my nephew's case - this is an impossible situation. Very often both parents, as in this case, are trying to go out to work. Senator Ardagh raised a similar matter the other day. I wanted to bring it to the attention of the House. The parents are asking for any possible intervention, but I think it demands a broader debate about the planning of such services for disabled citizens and carers. It should not be happening like this where one person's crisis, which is heartbreaking, leads to such chaos in other people's lives. They are already vulnerable to begin with.

I thank the Ceannaire and the Leas-Chathaoirleach for their flexibility in allowing me to speak on the matter.

Comment on this
Mark Daly An Leas-Chathaoirleach Fianna Fáil

It is an important issue and by the way that is not a conflict of interest, just so the Senator knows.

Comment on this

I thank the Senator for his remarks this morning. Parents are already in an impossible situation. Respite should be automatic in those situations. It should not be a constant battle. All of us deal with cases locally in our own communities where parents are trying to get weekend or overnight respite. The respite is granted but then pulled because no staff are available. Given the level of care in the home, the least parents can expect is a break, a regular break that they can rely upon. They need to know when it is coming and it should happen more than once a year. Given what parents are dealing with, respite is absolutely essential. Ultimately parents will reach breaking point.

We know that in certain circumstances in disability services across the country, parents are left to such an extent and for so long that when they finally do get respite there are times when children are not collected because parents just cannot cope because they have been left so long before they get a break. It is just a vicious circle. I feel pretty strongly about respite services. We need to put much more into that. It should be automatic. There should be plenty of it and parents should not have to fight so long for it. I do not know the full details of what is happening in the specific case the Senator mentioned. I would certainly hope that the Minister of State for disabilities can intervene there. While one service user has had a crisis point, it is terrible that all those other families are impacted in this way. That cannot persist for those families.

Respite is essential because otherwise the whole system breaks down. We expect an awful lot of parents in those situations and it cannot be left to the family to deal with it in those really impossible circumstances because they will get to a point where they will not be able to cope anymore. It is a vital service and we need to put more focus on it and investment into it. I appreciate from a HSE perspective that it is difficult to get staff in the disability sector. There just is not enough to go around. We need to look at pay and conditions and making it a more attractive career to go into because ultimately we need to attract more into the sector so we have more people working in that sector and can provide more services.

I draw attention to No. 1 on the Order Paper which is my own Bill. Normally someone would move it from the floor. It involves an amendment to the Non-Fatal Offences against the Person Act. It proposes to introduce an offence relating to catfishing. I am using the term that is more widely known for that issue. It is where somebody's personal information, their photographs and personal details, is used to set up an online account and the harm that can cause an individual. It is currently not a criminal offence unless there is fraud attached to it.

We know of a colleague in this House recently had one of those issues. The issue was covered by Ellen Coyne in the Irish Independent probably over a year and a half ago. The 2 Johnnies also did a podcast on it. One of them had a personal experience of a similar situation. The case covered by Ellen Coyne in the Irish Independent related to a woman whose profession was as a model-actor. She had a public job where her image and name were part of her work. Her image was used on online sites with her name and everything. That was used to set up relationships with other individuals.

We can all understand the damage that would do to somebody. It is not just the embarrassment of it but also the impact it might have on their career. It was not that there was any fraud attached to it, but it was deeply damaging and hurtful to the individual dealing with that circumstance. It can be very difficult to try to get those accounts taken down or to deal with that. I believe it is a gap in Irish law because we are still catching up with the online space where we are all operating more frequently now. It is one of these issues that has arisen in recent times because of the prevalence of online spaces and apps. These are places where people operate now and we have now seen that there is a gap in Irish law. This legislation is to try to deal with that.

Comment on this