Mike Henry scoliosis case
Senator Duffy raised the case of Mike Henry, a young constituent with severe scoliosis and respiratory problems, and later clarified that the family wants a second opinion. The Cathaoirleach reminded Members to respect family wishes when raising personal cases.
I raise a matter that is close to my heart. I met constituents on Monday, the parents of Mike Henry Benson. He was diagnosed with scoliosis. His parents, Penny and Michael, have been battling for their son in recent years, seeking to have the case heard and to get adequate treatment. Mike Henry has neurological impairment, scoliosis and type 2 respiratory failure. He is on oxygen every day and by night is on respiratory support.
Comment on this
For the information of Members, they are entitled to bring up any topic on the Order of Business. However, there is a balance between the public interest and people's rights. It has happened before that information has been brought up but families did not want it brought up. I want Senators to be conscious of that when they are speaking.
Comment on this
I am speaking with the permission of the family. I thank the Cathaoirleach for his contribution. The situation they are asking to be highlighted and addressed relates to a second opinion. Crumlin children's hospital has stated that it cannot operate on Mike Henry. The family is desperate for a second opinion. I am asking that we write to the Minister for Health so we can discuss the matter. I am making representations offline. I am asking that we fight for Mike Henry in this difficult situation for his family. All they want is a second opinion other than the assessment of those in Crumlin children's hospital. They are seeking a second opinion from abroad, perhaps from Great Ormond Street Hospital for Children or specialists in the US. I ask that we write to the Minister on the issue. I will do whatever I can to support this family. I hope we can at least give the family some hope in what is an extremely difficult situation.