FTD brothers fundraiser
The Chair welcomed students to the Gallery, and Senator Costello and Senator Nelson Murray praised the Adams brothers' marathon challenge to raise awareness and funds for frontotemporal dementia. Senator Nelson Murray also began to mention Navan rail at the end of her contribution.
I also acknowledge the students who were there from Sancta Maria College, Louisburgh, who are guests of Deputy Paul Lawless.
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Anyone who watched "The Late Late Show" on Friday night will have seen an interview with two brothers, Jordan and Cian Adams, known as the FTD brothers. They are undertaking an incredible challenge in memory of their mother, Geraldine. They are running 32 marathons in 32 days across Ireland, or 33 if we count the fact that Jordan began this journey by running the London Marathon with a fridge strapped to his back. What a way to start this campaign.
The mission is simple, namely, to raise awareness about and funds for dementia. This family is affected by frontotemporal dementia, FTD. FTD is a cruel and progressive brain disease that affects personality, behaviour, speech and movement. Unlike other forms of dementia, it often affects younger people, sometimes in their 40s and 50s. There is no cure at present and the impact on families and patients is devastating. Awareness matters, because understanding leads to early diagnosis, better support, more compassion and ultimately, more investment in research.
There are 64,000 people living with dementia in Ireland at present and that number is expected to double by 2045. There are more than 200 different types of dementia, including Alzheimer's, vascular dementia, VaD, Lewy body dementia, LBD, frontotemporal dementia and mixed dementia, just to name a few.
For Jordan and Cian, this campaign is personal. They run the risk of frontotemporal dementia. Their mum, Geraldine, who was Irish, lived with it and sadly passed away from the illness. Heartbreakingly, 12 members of their family have lost their lives to this illness. In the face of this grief, these brothers have chosen courage, compassion and action. They want the world to listen, hear and know about dementia. They want to educate people about dementia and the realities that people face every day. In ten days, they have raised €1 million for awareness and research; an extraordinary achievement. Their journey will conclude in Dublin on 28 May. They are asking as many people as possible to come out and support them, to dress in vibrant colours as their mother did, to shine a light on this cruel disease and to stand in solidarity with families and people affected by dementia. I encourage Members to follow and support their journey on social media through FTD brothers.
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I second my colleague. I met Jordan and Cian yesterday at the start of the Navan run and my goodness, it was such a humbling experience to hear them speak about what is going to lie in their future, what they are doing and the money they have raised. I advise everybody to get out in their counties to meet these two boys when they arrive. They have only done nine counties so far, but Members should make sure they are there when they arrive because it is a very special time.
I wish to use the remainder of my time to talk about Navan rail. Meath now has a population of 230,000 according to the last census and I have no doubt but that the figure is much larger than that. Time and again, public representatives, between county councillors such as Councillor Adenuga and Councillor Duffy, as well as many other cross-party councillors, TDs like the Minister, Deputy McEntee and all other TDs and myself, a Senator, have raised the issue of the absolute congestion of the car park that is the commute between Navan and Dublin or County Meath and Dublin.
It is soul-destroying to waste precious work, family and leisure time stuck in traffic. In 1850, we had a train line in Navan, but 176 years later we do not. This is the single biggest piece of transport infrastructure we can push into County Meath that will take thousands of vehicles off the road every day and help everybody, including all the counties around us. We are desperate in County Meath for this rail line.
We know the work has begun on the route selection for the Navan rail line. What I would like to know from the Minister and Irish Rail is when we will see this route and begin to progress this work. We were supposed to see it at the end of 2025. It was then going to be the beginning of 2026, but we still have not seen anything. I am asking that the route selected be put out for public consultation before the end of this month and that we make no excuses for this not happening. Let the people of Meath see the chosen route for the Navan railway line, let them have their say in May 2026 and do not delay any longer.