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Seanad
‹ An tOrd Gnó - Order of Business

Bohernabreena fly-tipping

Summary

Senator Costello raised illegal dumping in Bohernabreena, saying it is polluting the area, harming wildlife and damaging a valued rural landscape.

I want to speak about the area my family are originally from, namely, Bohernabreena. Less than a ten-minute drive from The Square, you enter a place that has a proud agricultural heritage and some of the richest natural landscape. It is just so beautiful. Its farmlands, rivers, waterworks and mountainous surroundings are not just a part of our local economy, but a part of our identity and a way of life.

It frustrates and annoys me that this beauty is being damaged by the ongoing scourge of fly-tipping. Illegal dumping is constantly polluting our roadsides, harming the wildlife, threatening waterways and placing an unfair burden on the local residents and farmers who take pride in caring for and working the land. We need stronger enforcement, better waste management awareness and real consequences to protect Bohernabreena's environment. It needs to be respected and protected, and not treated as a dumping ground. I have requested CCTV for some particularly badly affected areas and I hope it is installed sooner rather than later.

I will take this opportunity to give a brief update on the status of givinostat in Ireland. It represents a real hope for boys and families living with Duchenne muscular dystrophy. It is currently going through the HSE national application assessment and decision process for medicine pricing and reimbursement. I am told that the corporate pharmaceutical unit, CPU, is waiting for the manufacturer to revert with a commercial offer. While this is happening, families across Ireland are anxiously awaiting progress. I understand the importance of negotiations and ensuring safe and effective treatments but I highlight that time matters greatly for those living with progressive conditions such as Duchenne muscular dystrophy. As time goes by, these children's muscles are wasting.

I want to take a moment to welcome my little buddy Archie Ennis home to Tallaght following his gene therapy treatment in the US. Archie and his family have shown extraordinary courage throughout his Duchenne journey. Their story has touched people right across the country. His family were hit with his diagnosis and quickly discovered how difficult it was to navigate supports and treatments when living with Duchenne. They even had to turn to fundraising. The progression of this disease can be halted with givinostat and that is why we are advocating so passionately for it to be made available to children in Ireland. I want it known that I stand with all Duchenne families in their fight to access givinostat.

I also call on the Minister for Health to provide a clear status update on the development of the next cancer strategy as the current strategy, covering the years 2017 to 2026, is now in its final year. Over the past decade, the national cancer strategy has delivered important progress in cancer prevention, screening, diagnosis, treatment and survivorship. I acknowledge the work of the national cancer control programme, the clinicians, researchers, advocacy organisations and front-line healthcare staff, who have worked tirelessly to improve patient outcomes across Ireland. However, we are now at an important moment. Cancer cases are expected to rise significantly in the coming years and that is why planning for the next strategy, covering 2027 to 2037, is so important. The next strategy must address inequalities that exist in access to cancer care, where outcomes and waiting times depend too heavily on geography. We need major investment and a strategic procurement approach in diagnostic capacity, including MRI, CT and positron emission tomography, PET, scanning services, to ensure earlier diagnoses and faster treatment. I want to request that the Minister come to the Chamber to debate the status of the next cancer strategy. Has work formally commenced? What consultation process is planned? It is important that we get to debate the framework for cancer services beyond 2026.

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