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Dáil
‹ Order of Business

Access to invasive ventilation

Summary

Martin Ferris raises a motor neurone disease patient’s difficulty obtaining publicly funded invasive ventilation. The Minister expresses sympathy and advises a written or oral question to the Health Minister.

The Minister might have received an e-mail yesterday from a woman named Elaine regarding her friend Eimear, who is suffering from rapid and aggressive motor neurone disease, and her fight to have a right to invasive ventilation when the time comes.

The problem is that she has been told by her professor and the person treating her-----

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Seán Barrett An Ceann Comhairle Fine Gael

This not Question Time.

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-----that she does not have the financial means for invasive ventilation, and that this was HSE policy. However, the HSE states that it is up to the professor or the consultant treating her who has responsibility for providing invasive ventilation for the lady in question.

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Seán Barrett An Ceann Comhairle Fine Gael

That is a matter for a parliamentary question and not the Order of Business.

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I think everyone in the House got a similar e-mail and all of us cannot but empathise with her difficulty. I do not have the information, but I suggest the Deputy table a written question or raise it by way of an oral question with the Minister for Health.

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